Measuring patient experience and outcome in health care settings on receiving care after sexual violence: a systematic review

Measuring patient experience and outcome in health care settings on receiving care after sexual violence: a systematic review

PI: Dr Rachel Caswell (University Hospitals Birmingham NHS Foundation Trust)
CI: Dr Karen Lorimer, GCU; Prof Jonathan Ross (University Hospitals Birmingham NHS)
Funding: Sexually Transmitted Infections Research Foundation

The objectives of this review are

– to determine how patient reported outcomes measures (PROMS) and experiences (PREMS) have previously been defined and measured for men and women attending health care settings after experiencing sexual violence.
– to identify whether a “gold standard” measure of PROMS and PREMS exists for this group of patients, and if so how has it been defined in terms of reliability (are the results reproducible and consistent), validity (has an assessment been made of what patients consider to be important measures of quality and are they accurately evaluated), acceptability and feasibility;
– to identify key themes regarded by patients as priorities for delivering a high-quality service for individuals who have experienced sexual violence

2016

MacDonald, J., Lorimer, K., Knussen, C., & Flowers, P. (In Press). Interventions to increase condom use among middle-aged and older adults: A systematic review of theoretical bases, behaviour change techniques, modes of delivery, and treatment fidelity. Journal of Health Psychology.

Davis, M., Flowers, P., Lorimer, K., Oakland, J., & Frankis, J. (In Press). Location, safety and (non) strangers in gay men͛s narratives on hook-up apps. Sexualities.

Lorimer K, Babchishin K. Diverting tampon taxes will not solve the issue of violence against women. BMJ 2016;354

Frankis, J. S., I. Young, K. Lorimer, M. Davis and P. Flowers (2016). “Towards preparedness for PrEP: PrEP awareness and acceptability among MSM at high risk of HIV transmission who use sociosexual media in four Celtic nations: Scotland, Wales, Northern Ireland and The Republic of Ireland: an online survey.” Sexually Transmitted Infections 92(4): 279-285.

Lorimer K, Flowers P, Davis M, Frankis J. Young men who have sex with men’s use of social and sexual media and sex-risk associations: cross-sectional, online survey across four countries. Sexually Transmitted Infections 2016;92: 371-6

McAloney-Kocaman, K., K. Lorimer, P. Flowers, M. Davis, C. Knussen and J. Frankis (2016). “Sexual identities and sexual health within the Celtic nations: An exploratory study of men who have sex with men recruited through social media.” Global Public Health 11(7-8): 1049-1059.

2015

Pandor, A., E. Kaltenthaler, A. Higgins, K. Lorimer, S. Smith, K. Wylie and R. Wong (2015). “Sexual health risk reduction interventions for people with severe mental illness: a systematic review.” BMC Public Health 15(138).

MacDonald, J., K. Lorimer, C. Knussen and P. Flowers (2015). “Interventions to increase condom use among middle-aged and older adults: A systematic review of theoretical bases, behaviour change techniques, modes of delivery and treatment fidelity.” J Health Psychol.

Lorgelly, P. K., K. Lorimer, E. A. Fenwick, A. H. Briggs and P. Anand (2015). “Operationalising the capability approach as an outcome measure in public health: The development of the OCAP-18.” Soc Sci Med 142: 68-81.

Donald, G., M. Lawrence, K. Lorimer, J. Stringer and P. Flowers (2015). “The meaning and perceived value of mind-body practices for people living with HIV: a qualitative synthesis.” Journal of the Association for Nurses in AIDS Care. 26 660-672.

 

DeMaSH project

Deprivation, Masculinities and Sexual Health

PI: Dr Karen Lorimer
CIs: Prof Kate Hunt, Prof Lesley McMillan, Prof Lisa McDaid, Dona Milne, Rosie Ilett
Funder: Chief Scientist Office (CZH/4/925)

This ambitious qualitative study, funded by the CSO, recruited 116 men and women aged 18-40 years, from areas of high socio-economic deprivation across Scotland, to 18 focus groups and 35 individual interviews. The project explored an array of sexual health understandings and behaviours via a masculinities framework, to explore how we might better develop interventions to tackle poor sexual health outcomes. We embraced the WHO holistic definition of sexual health, which goes beyond ‘bugs and babies’ to include freedom from coercion and violence.  So, in this project we explored with men and women their understandings of various forms of gender-based violence.

here is the summary on the CSO website

Lorimer, K., L. McMillan, L. McDaid, D. Milne, S. Russell and K. Hunt (2018). “Exploring masculinities, sexual health and wellbeing across areas of high deprivation in Scotland: the depth of the challenge to improve understandings and practices.” Health and Place, Vol50. Open accesshttps://www.sciencedirect.com/science/article/pii/S1353829217300795

McDaid, L., K. Hunt, L. McMillan, S. Russell, D. Milne, R. Ilett and K. Lorimer (2019). “Absence of holistic sexual health understandings among men and women in deprived areas of Scotland: qualitative study.” BMC Public Health 19(1): 299. https://bmcpublichealth.biomedcentral.com/articles/10.1186/s12889-019-6558-y

2014 and earlier

Lorimer, K., S. Martin and L. McDaid (2014). “The views of general practitioners and practice nurses towards the barriers and facilitators of proactive, internet-based chlamydia screening for reaching young heterosexual men.” BMC Family Practice 15(1): 127.

McDaid, L. and K. Lorimer (2013). “P5. 044 A Proactive Approach to Online Chlamydia Screening: Qualitative Exploration of Young Men’s Perspectives of the Barriers and Facilitators.” Sexually Transmitted Infections 89(Suppl 1): A348-A348.

Lorimer, K. and L. McDaid (2013). “Young Men’s Views Toward the Barriers and Facilitators of Internet-Based Chlamydia Trachomatis Screening: Qualitative Study.” Journal of Medical Internet Research 15(12).

Lorimer, K., L. Kidd, M. Lawrence, K. McPherson, S. Cayless and F. Cornish (2013). “Systematic review of reviews of behavioural HIV prevention interventions among men who have sex with men.” AIDS Care 25(2): 133-150.

Gray, C., K. Hunt, K. Lorimer, A. Anderson, M. Benzeval and S. Wyke (2012). “(letter) My choice of words:  Words and context matter.” BMJ 344(e1370).

Reid, M., K. Lorimer, J. E. Norman, S. S. Bollapragada and J. Norrie (2011). “The home as an appropriate setting for women undertaking cervical ripening before the induction of labour.” Midwifery 27(1): 30-35.

Lorimer, K., L. Kidd, M. Lawrence, K. McPherson, S. Cayless and F. Cornish (2011). “Evidence of effectiveness of behavioural interventions to reduce transmission among men who have sex with men:  a review of review-level evidence (abstract).” The Journal of Sexual Medicine 8(Suppl 3): 84-299.

Lorimer, K., C. Gray, K. Hunt, S. Wyke, A. Anderson and M. Benzeval (2011). “Response to written feedback of clinical data within a longitudinal study: a qualitative study exploring the ethical implications.” BMC Medical Research Methodology 11(1): 10.

Gray, C., K. Hunt, K. Lorimer, A. Anderson, M. Benzeval and S. Wyke (2011). “Words matter: a qualitative investigation of which weight status terms are acceptable and motivate weight loss when used by health professionals?” BMC Public Health 11(1): 513.

Lorimer, K. and G. Hart (2010). “Knowledge of Chlamydia trachomatis among men and women approached to participate in community-based screening, Scotland, UK.” BMC Public Health 10(1): 794.

Lorimer, K. (2010). “Pilot qualitative analysis of the psychosocial factors which drive young people to decline chlamydia testing in the UK: implications for health promotion and screening (e-letter).” Int J STD AIDS 21(5): 379-a-.

Lorimer, K., M. Reid and G. Hart (2009). “” It has to speak to people’s everyday life…”: qualitative study of men and women’s willingness to participate in a non-medical approach to Chlamydia trachomatis screening.” Sexually Transmitted Infections 85(3): 201.

Lorimer, K., M. Reid and G. Hart (2009). “Willingness of young men and women to be tested for Chlamydia trachomatis in three non-medical settings in Glasgow, UK.” Journal of Family Planning and Reproductive Health Care 35(1): 21-26.

Systematic review: intervening after a HIV- test

The clinical effectiveness of individual behaviour change interventions to reduce risky sexual behaviour after a negative HIV test in men who have sex with men (MSM): systematic review and intervention development

PI: Prof Paul Flowers, (GCU)
Funder: NIHR HTA

Background: MSM experience significant inequalities in health and wellbeing. They are the group at highest risk of acquiring HIV within the United Kingdom. Guidance relating to both HIV prevention in general and individual level behaviour change interventions in particular is very limited.

Objective(s): To conduct an evidence synthesis of the clinical effectiveness of behavioural change interventions to reduce risky sexual behaviour after a negative HIV test in MSM. To identify effective components within interventions in reducing HIV risky related behaviours and develop a candidate intervention. To host expert events addressing the implementation and optimisation of a candidate intervention.

Data sources: All major electronic databases were searched between January 2000 and December 2014.

Review methods: systematic review of the clinical effectiveness of individual behaviour change interventions was conducted. Interventions were examined using the behaviour change technique taxonomy, theory coding assessment, mode of delivery and proximity to testing event. Data were summarised in narrative review and meta-analysis were carried out where appropriate. Supplemental analyses for the development of the candidate intervention focussed upon post hoc realist review methods, the assessment of the sequential delivery and content of intervention components, and the social and historical context of primary studies. Expert panels reviewed the candidate intervention for issues of acceptability and optimisation.

Results: Overall, trials included in this review (n=10) reported positive findings and suggest individual level behavioural change interventions are effective in reducing key HIV risk related behaviours. However, there were considerable clinical and methodological heterogeneity among the trials. Exploratory meta-analysis showed a statistically significant reduction in behaviours associated with high risk of HIV transmission (risk ratio 0.75; 95% CI 0.62, 0.91). Additional stratified analyses suggested effectiveness may be enhanced through face-to-face, immediately post-test delivery, theory based content and behaviour change techniques drawn from ‘goals and planning’ and ‘identity’ groups. All evidence collated within the review was synthesised to develop a candidate intervention. Experts highlighted overall acceptability of the intervention and outlined key ways the candidate intervention could be optimised to enhance UK implementation.

Limitations: There was a limited number of primary studies, all from outside the UK, and within them considerable clinical, methodological and statistical heterogeneity. The findings of the meta-analysis must be treated with caution, and may only be used for hypotheses generating. In terms of assessing intervention content and delivery, findings are limited by uncertain intervention fidelity, an overreliance upon published papers rather than intervention manuals, and the use of innovative methodologies.

Conclusions: The limited evidence regarding the effectiveness of behaviour change interventions does suggest they are effective in changing behaviour associated with HIV transmission. However, there are uncertainties around the generalisability of these findings to the UK setting. UK experts found the intervention acceptable and provided ways of optimising the candidate intervention.

Future work There is a need for well-designed, UK-based trials of individual behaviour change interventions which clearly articulate intervention content and demonstrate intervention fidelity.

Study registration: The study was registered as PROSPERO no.CRD42014009500

Funding details: The National Institute for Health Research Health Technology Assessment programme.

Final report can be found HERE